News

The Diamond Race is On

Sat, 12 May 2012 16:21:54 +0000

The second annual Lux Jewels Diamond Race returns May 26. Couples of all ages and backgrounds will spend the day racing around downtown Vancouver performing various mental and physical challenges for their chance to win the grand prize - a one-carat, cushion-cut diamond valued at $10,000. Read more at wevancouver

You can support the teams by…

- Author: Isabel Jordan

RARE FINDS 2012 A ROARING SUCCESS!

Tue, 24 Apr 2012 18:51:50 +0000

This year's RARE FINDS, signature fundraising event, was a Feast for the Senses! The third annual event was held at the Ferrari Maserati of Vancouver Showroom on Saturday, April 21^st and sold out to welcome 250 guests and sponsors! Ten celebrated Executive and Pastry Chefs from Vancouver and environs competed to please and tease the palates of…

- Author: Isabel Jordan

Rare Finds Gala Featured on Notable.ca

Sat, 21 Apr 2012 16:32:14 +0000

If you're in the mood to do some good while living it up this weekend, might we suggest you grab tickets to this do-good function set to take place Saturday night. It's guaranteed to provide the perfect venue for a little networking and offer you the perfect excuse to put on your party dress, or dust off that summer-style suit. Read more on notable…

- Author: Isabel Jordan

Family Counselling Assistance Program

Fri, 13 Apr 2012 22:16:15 +0000

Vancouver, BC

A pilot program to fund counselling for families coping with a rare disease

The Rare Disease Foundation has announced a pilot program, the Family Counselling Assistance Program, designed to fund counselling on a short-term basis for families coping with a rare disease.

When families are facing the diagnosis of a rare disease for…

- Author: Bill McKellin

Rare Finds 2012 Featured on arianecdesign.com

Wed, 11 Apr 2012 17:44:57 +0000

Ariane Colenbrander is a Vancouver-based communication designer and photographer who's lived and worked in the US, Canada, and The Netherlands. Between designing, she can be found exploring the city, covering local events in BC's backyard, reviewing well-designed and useful products and showing support for the Vancouver Canucks.

Rare Finds is…

- Author: Isabel Jordan

Rare Disease Foundation Benefits Extraordinary Kids

Tue, 03 Apr 2012 03:55:29 +0000

Vancouver Is Awesome promotes everything that makes Vancouver awesome, from old to new and everything inbetween. They're like the human interest piece on the news… only different.This week they found the Rare Disease Foundation and our Rare Finds Gala, well, Awesome! Take a look here!

- Author: Isabel Jordan

Lux Jewels nominated for a Community Impact Award for the Diamond Race

Sat, 10 Mar 2012 02:53:44 +0000

- Author: Isabel Jordan

Rare Disease Day Celebration

Wed, 29 Feb 2012 18:25:48 +0000

BC Women's and Children's Hospital
Lobby of the Chan Education Centre at the Child and Family Research Institute
February 29, 2012, 6:00-8:30pm

The Rare Disease Foundation believes in the power of a small amount of money carefully spent to make a big difference in the lives of…

- Author: Bill McKellin

Rare Disease Day to be Featured on Rogers TV - Daytime Ottawa

Mon, 27 Feb 2012 22:28:06 +0000

Wednesday
February 29
Today is not only a Leap Year but also Global Rare Disease Day. We will be talking to Julie Drury, who is the mother of a medically complex child about her family's experience with rare disease.

For schedule information go to the Daytime Ottawa website.

- Author: Isabel Jordan

Media Advisory - Celebrating Rare Disease Foundation's Micro-Grant Research Program

Mon, 27 Feb 2012 17:28:21 +0000

MEDIA ADVISORY

Vancouver,BC

February 27, 2012

February 29^th is International Rare Disease Day

A Rare Day for Rare Diseases

Local organization transforming the world of rare disease care.

As a celebration of the success of the Rare Disease Foundation's Micro-Grant Research Program the organization will be hosting an event…

- Author: Roberta Pak