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International Rare Disease Day
Feb 29
- Time
- Wednesday, February 29 6PM Pacific Time (GMT-08:00) Export
- Summary
Celebrate Rare Disease Day with the Rare Disease Foundation. We're bringing together our researchers, volunteers and community to celebrate some of our successes. Join us for the evening and find out where our research dollars are spent and how our families connect and draw support for one another. Please RSVP to let us know if you're coming. See you there!
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Labels:
BC, Board Members, Donor, Event, Health services, In the media, Parents and family, Research
- Post Date:
- July 5, 2011
- Posted By:
- Isabel Jordan
Viewed 300 times
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4 Comments
What is happening that day??
We will be having some researchers presenting work they've done with microgrant money they've received from the Rare Disease Foundation. There will be presentations, speakers, yummy food and drink. We'll be celebrating our successes and talking about where we want to go from here.
I am looking forward to hearing about the advances being made in research as a direct result of our micro-grant program.
I have a daughter with a rare disease called Churg Strauss Syndrome and I am looking forward to hearing what this meeting is all about. I heard about the Rare Disease Foundation from the BCCH. Thank you for having programes like this.
Pam Mann
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