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Tuesday, September 6, 2011By Benjamin Alldritt, North Shore News
A North Vancouver boy's battle with a rare degenerative disease took a turn for the better this August, when he was approved to take part in the trial of a promising new drug. He is the first Canadian to join the study.
I'm the mom of two children; my oldest has been diagnosed with a ultra-rare or unique disorder. I've always done a lot of volunteer work at a variety of non-profit groups and right now I'm co-chair…
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Rare Disease Foundation and rare disease in the media.
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