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Girl has disease that turns body into bone

By Isabel Jordan – July 27, 2011
OfflineIsabel Jordan

The parents of Miranda Friz, Peter and Karen, didn't notice anything was different about their darling baby girl until she took a tumble at a local water park at the age of two.

CTV BC's Tamara Taggart profiles the Friz-Munro family on April 9th 2011.

 

About the author

Isabel Jordan

I'm the mom of two children; my oldest has been diagnosed with a ultra-rare or unique disorder. I've always done a lot of volunteer work at a variety of non-profit groups and right now I'm co-chair…

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July 27, 2011
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Isabel Jordan

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Rare Disease Foundation and rare disease in the media.

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