Ian Brown's book, The Boy in the Moon, an account of his life with his son Walker who has Cardiofaciocutaneous Syndrome, was selected as one of the NY Times' 10 Best Books of 2011. Ian has spoken several times to the Rare Disease Foundation Parents 2 Parents group, including a "Fathers Only" evening in October 2011.
NY Times 10 Best Books of 2011
A Father's Journey to Understand His Extraordinary Son.
By Ian Brown. St. Martin's Press, $24.99.
A feature writer at The Globe and Mail in Toronto, Brown combines a reporter's curiosity with a novelist's instinctive feel for the unknowable in this exquisite book, an account - at once tender, pained and unexpectedly funny - of his son, Walker, who was born with a rare genetic mutation that has deprived him of even the most rudimentary capacities.
2 Comments
Looks like a good read!
It was a great talk he gave at the father's group. Hopefully we get a chance to hear him speak again.... I walked away with quite a few insightful nuggets
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