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Liam Thom's rare condition

By Isabel Jordan – July 27, 2011
OfflineIsabel Jordan

In part one of the CTV BC series on rare diseases, Tamara Taggart profiles a young boy with a rare genetic defect who won't live a long life but could provide a legacy for others.

Watch the moving piece from April 5th 2011 on the CTV BC website.

 

About the author

Isabel Jordan

I'm the mom of two children; my oldest has been diagnosed with a ultra-rare or unique disorder. I've always done a lot of volunteer work at a variety of non-profit groups and right now I'm co-chair…

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July 27, 2011
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Isabel Jordan

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Rare Disease Foundation and rare disease in the media.

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