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Rare Disease Day 2012

By Isabel Jordan – February 9, 2012
OfflineIsabel Jordan

Rare Disease Foundation Part of International Movement

The Rare Disease Foundation is part of an interntional rare disease community dedicated to the theme of Solidarity - the need for collaboration and mutual support in the field of rare diseases. Rare Disease Day events are taking place in countries around the world. The focus of 'Rare But Strong Together' echoes that of the Rare Disease Foundation's own mission of researchers, caregivers and families working together to find solutions.

Two major events are happening in Canada for Rare Day. The Rare Diseae Foundation will be showcasing some research success stories and the importance of families uniting for mutual support and benefit at an evening event on February 29th in Vancouver, BC. All are welcome to attend but please go see the invitation for RSVP information. In Ottawa, CORD is hosting a Rare Disease Day Dinner Gala and a Rare Disease Day Dinner Conference. Information about both can be found at www.raredisorders.ca

Please go to the International Rare Disease Day website for information about events being held around the world.

 

 

About the author

Isabel Jordan

I'm the mom of two children; my oldest has been diagnosed with a ultra-rare or unique disorder. I've always done a lot of volunteer work at a variety of non-profit groups and right now I'm co-chair…

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