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February 27, 2012
Media Advisory - Celebrating Rare Disease Foundation's Micro-Grant Research Program
By Roberta Pak
The foundation will be hosting an event highlighting several grant recipients plus a parent will speak on the importance of research into rare diseases both as it directly impacts care and research into other common disorders. This micro-grant program has had a direct impact by funding research where four effective rare disease therapies have been developed.
MEDIA ADVISORY
Vancouver,BC
February 27, 2012
February 29th is International Rare Disease Day
A Rare Day for Rare Diseases
Local organization transforming the world of rare disease care.
As a celebration of the success of the Rare Disease Foundation's Micro-Grant Research Program the organization will be hosting an event highlighting several grant recipients. There will be brief presentations on the results of their research including highlights on a program that when…
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July 27, 2011
The Diamond Race was an amazing success with over $9 000 raised for the Rare Disease Foundation
By Isabel Jordan
Lux Jewels put on the amazing Diamond Race in Vancouver, raising over $9 000 for the Rare Disease Foundation
Suman Bakshi of Lux Jewels put on the incredible one day Diamond Race on March 5 2011 - where couples competed to win a beautiful diamond and raise funds for the Rare Disease Foundation. Take a look at a video highlight real here and stand by for details on the next Diamond Race!
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July 26, 2011
Prominent Genetics Foundation to Present Bikes to Children with Rare Diseases
By Isabel Jordan
During the first annual ACMG Foundation Day of Caring, the ACMG Foundation, a prominent non-profit genetics foundation based in Bethesda, MD will give new bicycles to 20-25 children from the Rare Disease Foundation of Vancouver Br
Prominent Genetics Foundation to present Bikes to Children with Rare Diseases at heartwarming first annual Day of Caring event to be held Saturday March 19, 2011 at Vancouver BC convention centre. Read more...
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November 25th marked the 3rd annual Lace-Up for Kids - an event targeted to raise money for the Rare Disease Foundation and Children's Hospital
Read more about the amazing 3rd annual Lace-Up for Kids in the December 1st 2010 edition of UBC REC's The Point.
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UBC REC presents the third annual Lace-Up for Kids, a skate-a-thon in support of the Rare Disease Foundation.
The Rare Disease Foundation is featured in the November 21 2010 edition of the North Shore News.
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July 26, 2011
Meet the children of the Rare Disease Foundation - Introducing Miranda Friz
By Isabel Jordan
Ever wondered whom the money raised from Lace-Up for Kids goes to benefit?
Read about Karen and Mirana as UBC REC's Navi Dasanjh interviews them for the November 15th edition of The Point.
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Over $62 000 raised for rare disease research at UBC REC's Lace Up for Kids event
On November 26th, the UBC community and the rare diseae community came together at Thunderbird Winter Sports Centre to help kids shine bright! Over $62 000 was raised to support the Rare Disease Foundation's Microgrant program. Many thanks to UBC REC and BC Children's Hospital Foundation for all their help in making the event an overwhelming success.
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In the days that followed the birth of her first child, Ani Khoudian's heart was overflowing with questions about what the future would hold for him.
Read more in the November 24th 2008 North Shore News.
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