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Internet can be helpful partner for patients with rare disease

By Isabel Jordan – July 27, 2011
OfflineIsabel Jordan

An interesting article that quotes the Rare Disease Foundation's own Bill McKellin!

Pamela Lewis Dolan of American Medical News takes a look at internet usage and the rare disease community in this article posted on April 25th 2011.

 

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Isabel Jordan

I'm the mom of two children; my oldest has been diagnosed with a ultra-rare or unique disorder. I've always done a lot of volunteer work at a variety of non-profit groups and right now I'm co-chair…

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July 27, 2011
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Isabel Jordan

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The latest in Rare Disease Research including Rare Disease Foundation funded projects.

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