This summer Dave Proctor will be running across Canada to raise funds for the Rare Disease Community his family is a part of. He is appealing for our help to get him moving every morning. Here's your chance to be a part of it!
Dave Proctor's epic Outrun Rare journey will begin on June 27 2018. He'll be getting up every morning at 4:30am in order to complete this monumental task - an attempt to break a world record of running across Canada and raising one million dollars for the rare disease community. But to do this, he's asking for our community's help. He needs our words to remind him of why he needs to keep going every single day.
Please, use this portal to send in a short video (no longer than 60sec) telling Dave why he needs to get up and run. We'll make sure that they're cued up for every morning of his run. Tell him "Dave, you need to run today because..." Before he gets out of bed he'll check our Instagram or Facebook and somewhere along the way - your words might be the ones that keep him running.
Here's a letter from Dave, telling us why he needs our help to get him through this amazing endeavour:
"On 2018 June 27 I will embark on a run starting in Victoria and ending in St John's 66 days later. This record breaking run will carry me the entire 7,200km across Canada, averaging 108km per day with no days off. Along the way we will be having events in larger communities to raise funds and awareness for the Rare Disease Foundation with a goal of raising more than $1,000,000.
My son Sam struggles daily with a rare disease called Relapsing Encephalopathy with Cerebellar Ataxia. I will go to the ends of the earth for him and in this venture I may just need to. It breaks my heart to witness on a daily basis his roadblocks, turmoil, and struggles. This is the same heartbreak that the entire rare disease community faces due to the lack of support and research in Canada. In this great country our inability to fund rare disease research and support is unacceptable and I for one will not turn away from the 1 in 12 any longer.
I hold numerous Canadian and world ultra running records and on paper this speed record across this vast country makes mathematical sense. However if I can be honest with you most days I lie in bed scared of what lies ahead. The idea of running 108km per day for 66 days straight through the heat of the summer makes even me second guess this endeavour. The thing that makes me the most intimidated is for the first time in my life I will be shouldering an entire community's hopes and dreams on my two worn and tired legs. This is where I believe we can flip the script and change the tone of our conversation. Instead of feeling the weight of this task and the expectations of rare disease community, maybe we can create a cheerleading squad from this very community that will lift up not only me but the entire rare disease cause to new heights.
What I'm asking of you is simple. I need you to take out your phone and make a short (no longer then 60 second) video with you and your family explaining why I need to run today. All videos will start with you saying: "Dave you need to run today because..." Get creative, be passionate, tell you and your family's story. Convince me to look east, run fast, create a new world for rare disease in Canada, and never look back. These stories will propel me on this grueling 66 day journey but will also act as a way for Outrun Rare and the Rare Disease Foundation to tell the, to this point, untold stories of rare patients and families and making the rest of Canada stand up and pay attention to this enormous need. Your stories will be shared on social media so a release waiver will be needed but I believe this is a very unique opportunity to create a conversation that will be resoundingly loud.
7,200km in 66 days as truly a herculean task. By the time I will have reached Calgary only nine days into my run my legs will be tattered and rendered medically useless. The daunting idea of continuing on will be mind numbing and will paralyze the better part of me. But that's okay because the good news is at that point I won't need to run with my legs anymore, I'll need to run with my heart and my heart will be lifted by my son Sam, my family, and all of you in the rare disease community across this country."