Reminders

BC Events

Upcoming Events

Feb
13

Victoria Area Parent 2 Parent Resource Network

Tuesday, February 13 7PM → 9PM Pacific Time (GMT-08:00)
This Month's Topic: Coping strategies while navigating a rare disease

Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
Feb
21

Vancouver Area Parent 2 Parent Resource Network

Wednesday, February 21 7PM → 9:30PM Pacific Time (GMT-08:00)
This Month's Topic: TBA

The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
Mar
13

Victoria Area Parent 2 Parent Resource Network

Tuesday, March 13 7PM → 9PM Pacific Time (GMT-08:00)
This Month's Guest Speaker: Expert from Moola

Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
Apr
10

Victoria Area Parent 2 Parent Resource Network

Tuesday, April 10 7PM → 9PM Pacific Time (GMT-08:00)
This Month's Guest Speaker: Paul Mohapel

Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
Apr
18

Vancouver Area Parent 2 Parent Resource Network

Wednesday, April 18 7PM → 9:30PM Pacific Time (GMT-08:00)
This Month's Topic: TBA

The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
May
8

Victoria Area Parent 2 Parent Resource Network

Tuesday, May 8 7PM → 9PM Pacific Time (GMT-08:00)
This Month's Topic: TBA.

Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
May
16

Vancouver Area Parent 2 Parent Resource Network

Wednesday, May 16 7PM → 9:30PM Pacific Time (GMT-08:00)
This Month's Topic: TBA

The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
Jun
12

Victoria Area Parent 2 Parent Resource Network

Tuesday, June 12 7PM → 9PM Pacific Time (GMT-08:00)
This Month's Topic: TBA.

Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
Jun
20

Vancouver Area Parent 2 Parent Resource Network

Wednesday, June 20 7PM → 9:30PM Pacific Time (GMT-08:00)
This Month's Topic: TBA

The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
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