Victoria Area Summer Family Rare Disease BBQ
Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
Summer Family RDF BBQ.
Annual summer family RDF BBQ is currently in the planning stages but the hope is to have a great lunch/afternoon of fun and food for our amazing kids and families. Stay tuned for more details.....times are just rough at this point
As it is really helpful for us to have an idea of who is able to attend, we would really appreciate people RSVPing to Jocelyn(email:Jocelyn.CarterSim@viha.ca) by August 5, 2017. We understand that life happens and we won't hold you to coming but we like to have a sense for food and drinks as to who will likely be attending. Thank you in advance.
Jeneece Place (by Victoria General Hospital) - in the Media Room (bottom floor)
201 Hospital Way, Victoria, B.C.