Vancouver Area Parent 2 Parent Resource Network
This Month's Topic: Family Support Institute Guest Speaker -"Who is Family Support Institute And What We Offer"
The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
This Month's Topic: Guest Speaker -Mandy Young (Family Support Institute)
"Who is Family Support Institute And What We Offer"
The Family Support Institute (FSI) is a provincial non-profit charitable society registered in 1985. FSI was created to strengthen families faced with the extraordinary circumstances that come with having a family member who has a disability.
Directed by families, the Family Support Institute assists and supports approximately 10,000 families who have a family member with a disability each year. This support stems mainly from our large volunteer network of over 200 Resource Parents (RPs) and Resource Family Members (RFMs)
Mandy Young is the mother of a beautiful 6-year-old daughter with Prader-Willi Syndrome-a rare disease and autism spectrum disorder. She has been advocating over the years for her daughter and families in her community to be able to access appropriate resource relevant to their lives. Keeping open communication with the extensive medical and behavioral teams has been invaluable to get the best support for her. She hopes to help other families through her new role as RP with FSI.
Light refreshments will be provided at the meeting.
New parents are always welcome.
**PLEASE NOTE THE LOCATION CHANGE FOR THIS MONTH'S MEETING***
Ambulatory Care Building, Room KO-155 (the same building as Starbucks -down one level. Refer to picture map).
BC Children's Hospital Campus
950 West 28th Avenue
For further detailed directions: https://bcchr.ca/about-us/contact-us