Vancouver Area Parent 2 Parent Resource Network
This Month's Discussion: Resilience in the face of a rare disease
The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
This Month's Topic: Resilience in the face of a rare disease
Patricia Birch will be facilitating our discussion this month on resilience.
Patricia is a researcher, nurse, educator, and lab manager for the Friedman Lab in UBC Medical Genetics. Her current research explores the complex challenges of providing decisional support to families’ who are considering genome-wide sequencing. The common threads throughout her career have been patient and family advocacy and an interest in the relationship dynamics between consumers and providers of health care.
Light refreshments will be provided at the meeting.
New parents are always welcome.
Children and Family Research Institute (CFRI)
BC Children's Hospital Campus
950 West 28th Avenue
For further detailed directions: https://bcchr.ca/about-us/contact-us