Reminders

Home

The Face of Rare Diseases

Image Preview

Novel discoveries funded by the Rare Disease Foundation and recently published in the journal Nucleic Acids Research appear poised to lead to potential new therapies to treat …

                                           

August 25, 2016 

Vancouver, BC – Novel discoveries funded by the Rare Disease Foundation and recently published in the journal Nucleic Acids Research

Read More »
Image Preview

A key event in the rare disease calendar, the Cambridge International Rare Disease Summit brings together academia, healthcare, industry, business, patient support groups and …

Read More »
Image Preview

Dans ce numéro :
- Faisons adopter un Cadre règlementaire pour les médicaments orphelins au Canada
- Les conférences, colloques et journées éducatives sur des maladies…

Read More »
Image Preview

Fellow members of the rare diseases community:

Now is a critical time for our campaign to implement a federal orphan drug regulatory framework and an intergovernment…

Read More »
Image Preview

It is with great excitement that we are announcing our Edmonton Parent 2 Parent Resource Network this September! CTV Edmonton was on hand to interview 3 of our Edmonton famili…

Our dedicated group of Edmonton volunteers are working hard to make the reality of a cross-disease family Resource Network happen. A kick-off picnic on August 28th will let families get to know…

Read More »

The Rare Disease Foundation is a collaborator in Child-Bright, the new $25 million Canadian research program for children with brain-based conditions and their families.


OfflinePhoto of Isabel Jordan
February 22, 2016

Social Medial Awareness Campaign for Rare Disease Day

Isabel Jordan

In partnership with the Regroupement québécois des maladies orphelines (RQMO), we are getting the voice of the rare disease community heard! Join our Thunderclap campaign for to make a huge impact on February 29th, International Rare Disease Day so that it will trend on social media!


Load More
1.png

Resources

Join our
online community

To access our

Resources wiki
Forums
Video library of meetings

New member registration
       Register
Already a member?
       Sign In

Event Calendar


Nov05

Inaugural Rare Finds Calgary

Saturday, November 5 7PM → 11PM MT

Load More

Viewed 337,574 times