In partnership with the Regroupement québécois des maladies orphelines (RQMO), we are getting the voice of the rare disease community heard! Join our Thunderclap campaign for to make a huge impact on February 29th, International Rare Disease Day so that it will trend on social media!
With the help of co-ordination of Thunderclap, all of our messages will post simultaneously across Facebook, Twitter, and Tumblr letting the world at large know the importance of the Patient Voice, and of the rare disease community. Follow the link below to add your voice to our message!
Agree now to post across your social media accounts, and on the 29th of February, Thunderclap will take care of making a big noise for us!
In partnership with its Resource Network volunteers, a variety of community partners and through the sponsorship of Shire Canada, the Rare Disease Foundation is excited to announce seven separate Rare Disease Day celebrations across Canada. Each event is an expression of a local rare disease community and reflects the connections between patients, families, researchers and health care providers - relationships that are key in improving care for the rare disease community.