The Rare Disease Foundation is a collaborator in Child-Bright, the new $25 million Canadian research program for children with brain-based conditions and their families.
Every child deserves a bright future, says Dr. Annette Majnemer.
Occupational therapist and scientist at the MUHC Research Institute, Majnemer is hoping a $25 million research grant announced Thursday will help improve the lives of families and children with brain-based disabilities such as autism spectrum disorders, cerebral palsy and attention deficit.
Based at the Montreal Children’s Hospital, Majnemer is the lead investigator of a new Canadian network research project on brain-based…
In partnership with the Regroupement québécois des maladies orphelines (RQMO), we are getting the voice of the rare disease community heard! Join our Thunderclap campaign for to make a huge impact on February 29th, International Rare Disease Day so that it will trend on social media!
With the help of co-ordination of Thunderclap, all of our messages will post simultaneously across Facebook, Twitter, and Tumblr letting the world at large know the importance of the Patient Voice, and of the rare disease community. Follow the link below to add your voice to our message!
Agree now to post across your social media accounts, and on the 29th of February, Thunderclap will take care of making a big noise for us!